We are a group of physicians, researchers, and educators focused on learning more about osteogenesis imperfecta and developing new and better treatments to improve the care of patients with osteogenesis imperfecta.
The Brittle Bone Disorders Consortium (BBDC) initiates and supports collaborative research on osteogenesis imperfecta (OI). The BBDC welcomes both consortium members as well as non-BBDC investigators to propose pilot studies in OI that leverage BBDC research data or infrastructure.
On September 22, 2022, the OI Foundation was joined by Dr. Reid Sutton (Geneticist at Baylor College of Medicine, Administrative Director and Principal Investigator of the Brittle Bone Disorders Consortium, and member of the OIF Medical Advisory Council and Board of Directors) to discuss the Longitudinal Study of Osteogenesis Imperfecta. This study, also known as the Natural History Study, is the largest research project ever conducted on people with OI. Dr. Sutton discussed the design of the study, its goals, and what researchers have learned so far. Watch the recording of this session on YouTube.
Dr. Brendan Lee (Principal Investigator for the Brittle Bone Disease Consortium) joined the OI Foundation to discuss new drugs being studied to treat osteogenesis imperfecta and the drug development process.
Watch the session recording.
Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.
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