Resources

Videos

BBDC Research Update: Longitudinal Study

On September 22, 2022, the OI Foundation was joined by Dr. Reid Sutton (Geneticist at Baylor College of Medicine, Administrative Director and Principal Investigator of the Brittle Bone Disorders Consortium, and member of the OIF Medical Advisory Council and Board of Directors) to discuss the Longitudinal Study of Osteogenesis Imperfecta. This study, also known as the Natural History Study, is the largest research project ever conducted on people with OI. Dr. Sutton discussed the design of the study, its goals, and what researchers have learned so far. Watch the recording of this session on YouTube.

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The Current State of OI Research: An Update for the OI Community

On Wishbone Day, May 6, Cameron Penn, President of the OIF Board of Directors, interviewed Dr. Brendan Lee, Principal Investigator for the Brittle Bone Disease Consortium (BBDC). Their discussion covers the history of the BBDC, current OI research, and answering audience questions.
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OI Research Update: Women's Health and Pregnancy

Tracy Hart, CEO of the OI Foundation, and Dr. Deborah Krakow, OIF Medical Advisory Council (MAC) member, discuss women's health and pregnancy research.
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Research Update: Dental Health and OI

Dr. Jean-Marc Retrouvey, Professor and Chair of the Department of Orthodontics and Dentofacial Orthopedics at the University of Missouri-Kansas City, and Tracy Hart, OIF CEO, joined OI community members to discuss current research in dental health and orthodontics.
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Research Update: Mental Health and OI

During this session, Dr. Reid Sutton (Geneticist at Baylor College of Medicine and OIF Medical Advisory Council member) and Dr. Eric Storch (Vice-Chair and Head of Psychology at Baylor College of Medicine) share their experience working with the OI community, outline the new study the BBDC is undertaking around mental health, and explain what they hope to learn.
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BBDC Research Update: New Medical Treatments 

Dr. Brendan Lee (Principal Investigator for the Brittle Bone Disease Consortium) joined the OI Foundation to discuss new drugs being studied to treat osteogenesis imperfecta and the drug development process.

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Related Organizations

American Academy of Orthopaedic Surgeons

American Society for Bone and Mineral Research

National Coalition for Osteoporosis and Related Bone Disease: National Action Plan for Bone Health

National Human Genome Research Institute

National Osteoporosis Foundation

National Institutes of Health

The NIH Osteoporosis and Related Bone Diseases~National Resource Center

The OI Federation of Europe (OIFE)

Shriners Hospital for Children Directory