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CEGIR News
CEGIR Spotlights
  • CEGIR & the CURED Difference

    With the creation of the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR, U54 AI117804) in 2014, patient advocacy groups (PAGs) were formally incorporated into the unified infrastructure to facilitate research on EGIDs. A notable champion in this process has been the Campaign Urging Research for Eosinophilic Disease (CURED), a PAG that has earned a name in the EGID community for their generosity in helping others. As a partner of CEGIR since its creation, CURED has contributed in many ways, serving on committees, helping to recruit patients, practicing and teaching advocacy, and financially supporting CEGIR in its missions including its Pilot Programs and Career Enhancement (Training) activities. CURED's generosity is not only to help others but to fund CEGIR with $25,000 per year; these funds are used for a number of CEGIR research activities at the discretion of CEGIR. These activities may include partial funding for the Career Enhancement Core (Training Program) and Research Pilot Studies.

  • APFED & CEGIR Announce Recipient for 2020 Co‐funded Pilot Grant Award

    APFED & CEGIR Announce Recipient for 2020 Co‐funded Pilot Grant … ATLANTA, GA & CINCINNATI, OH – APFED and CEGIR have awarded a 2020 co‐funded pilot grant award to … APFED is providing $25,000 in funding for 2020 while CEGIR will provide funding for 2020 and 2021. Dr. …

  • CEGIR – Improving research of eosinophilic gastrointestinal disorders with the patient perspective

    CEGIR – Improving research of eosinophilic … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR, https://www.rdcrn.org/cegir , U54 AI117804) in 2014, patient advocacy groups …

  • CEGIR – Changing the paradigm in research of eosinophilic gastrointestinal disorders

    CEGIR – Changing the paradigm in research of eosinophilic … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR, https://www.rarediseasesnetwork.org/cms/cegir , U54 AI117804) was established in 2014 to overcome …

  • Patients Power Research in Eosinophilic Gastrointestinal Disorders

    … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) is demonstrating how partnering with patients can accelerate discoveries for rare diseases. CEGIR is one of 23 active consortia funded through the … must actively partner with patient advocacy groups. CEGIR’s team includes three main patient advocacy groups …

  • Connecting Rare Disease Patients and Families with Informational Resources on COVID-19

    … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) 3/30/2020 : CEGIR shared a video message on COVID-19 from Dr. Marc … Diseases (CURED) shared an infographic with CEGIR telemedicine recommendations, guidance for patients …

  • Rare Diseases Research Groups & Studies

    … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) rdcrn.org/cegir …

  • Working Together to Find Answers: An Example of Patient Advocacy Group Involvement

    … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) joined the Rare Diseases Clinical Research Network … of the Office of Rare Diseases Research at NCATS, NIH. CEGIR’s mission is to improve the lives of individuals … several Patient Advocacy Groups (PAGs) collaborating with CEGIR to conduct research that is meaningful to our patient …

  • Dr. Rothenberg received the Paul Ehrlich Lectureship Award

    … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR). The award is the highest honor bestowed by the … Symposium of the International Eosinophil Society .  CEGIR represents pediatric and adult multidisciplinary … More about CEGIR: https://www.rdcrn.org/cegir …

  • Patient Organizations

    … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) CReATe: Clinical Research in ALS and …

  • Central IRB Impact

    … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) and director of the Division of Allergy and … Hospital Medical Center, relayed the experience of CEGIR. He explained the process of sIRB review from

  •  Update on Complion (eRegulatory binder)

    … Consortia that have been trained include BBDC, BVMC, CEGIR, CPIC, DSC, FCDGC, GDMCC, INC, PC, PIDTC, UCDC and …

    Emily.Oehler@c… - 04/06/2020 - 12:09

  • Selected Publications From RDCRN Consortia in 2015 

    … of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) Herein, CEGIR provides recommendations for the dietary treatment of …

  • Patients Power Research in Eosinophilic Gastrointestinal Disorders
Patient Advocacy Group Events

2021

2020

American Partnership for Eosinophilic Disorders (APFED)

2020 Campaign Urging Research for Eosinophilic Disease (CURED)

Eosinophilic Family Coalition 2020 Events

  • August 20th: Zoom: Coping & Succeeding with Back to School 2020
  • September 29th: Zoom: EGIDs & Clinical Trials
  • November 11th: EGIDs, Restrictive Diets, & Holiday Cooking
  • December 15th: Dallas Ft Worth Mom's Night 

For more details, visit our website.

Diversity Corner

Articles of Interest

 

Updated Guidance on the Reporting of Race and Ethnicity in Medical and Science Journals 

Flanagin, A., Frey, T., Christiansen, S. L., & AMA Manual of Style Committee (2021). Updated Guidance on the Reporting of Race and Ethnicity in Medical and Science Journals. JAMA, 326(7), 621–627. https://doi.org/10.1001/jama.2021.13304 

 

Race, ethnicity, and racism in the nutrition literature: an update for 2020 

Duggan, C. P., Kurpad, A., Stanford, F. C., Sunguya, B., & Wells, J. C. (2020). Race, ethnicity, and racism in the nutrition literature: an update for 2020. The American journal of clinical nutrition, 112(6), 1409–1414. https://doi.org/10.1093/ajcn/nqaa341  

 

Striving for Diversity in Research Studies 

Editors, & Rubin, E. (2021). Striving for Diversity in Research Studies. The New England journal of medicine, 385(15), 1429–1430. https://doi.org/10.1056/NEJMe2114651 

 

Recent Presentations

April 27, 2022
Title: Child Opportunity Index (COI) and Asthma 
Speaker: J. Pablo Abonia, M.D. 

February 8th, 2022
Title: CEGIR Diversity, Inclusion and Equity Committee 
Speaker: Dominique Bailey, MD 

October 27, 2021
Title: Collecting And Reporting Race, Ethnicity And Social Determinants Of Health 
Speaker: Paneez Khoury, MD, MHSc 

September 22nd, 2021
Title: Striving for Diversity in Research Studies
Speaker: Vince Mukkada, MD 

August 23rd, 2021
Title: CEGIR Diversity, Inclusion and Equity Committee Updates 
Speaker: Glenn Furuta, MD 

January 26, 2021
Title: Addressing highlights of the article & the current definition of race
Speaker: Dominique Bailey, MD & Amy Klion, MD