The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is working to advance the pace of clinical and translational research in the dystonias to find better treatments. We can help you:

Learn about how you can participate in clinical research to help in the effort to learn more about your condition
Get in contact with experienced doctors and other providers familiar with your condition
Find other people with your condition who may wish to share their knowledge and experience through patient support groups

Learn More About The Dystonia Coalition >

Frontiers in Neurology Article Offers Inside Look at Dystonia Coalition

An overview of the Dystonia Coalition, its research, and its international network of 56 sites is now available in a special issue of Frontiers in Neurology. The article highlights the role of the consortium within the Rare Diseases Clinical Research Network, with its focus on the mission of clinical trial readiness, large-scale collaboration, and sharing

Dystonia Coalition Career Development and Pilot Projects Programs 2022

Funding opportunities for research projects focusing on dystonia

The goals of the awards are to facilitate career development for junior investigators interested in clinical and translational research relating to dystonia, provide a mechanism for more senior investigators from other fields to get involved in dystonia research, and foster the most promising clinical and translational studies of direct relevance to dystonia

Career Development Program Pilot Projects Program

Announcement

The Pilot Feasibility Core of the Developmental Synaptopathies Consortium (DSC) is pleased to announce that it will fund an estimated $30,000 total costs per project (three in total) to stimulate additional research in Tuberous Sclerosis Complex (TSC), PTEN Hamartoma Syndrome (PHTS) and Phelan-McDermid Syndrome (PMS) through the DSC NIH grant. The funding will be coordinated, dispersed and evaluated for progress through the DSC infrastructure.

Click to access a link to the application which is due April 15, 2022

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You Can Help Shape Dystonia Research

The goal of the GDR is to support future dystonia studies, including clinical and research trials, through the collection of data on persons affected by dystonia. Your responses can help researchers better understand the dystonia experience and help guide future directions in research.