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Patient Advocacy

  Get Involved   >   Patient Advocacy
Patient Support and Advocacy Groups

Patient advocacy groups are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.

 
Cystic Fibrosis Patient Organizations
PCD Patient Organizations:
  • United States
  • United Kingdom
  • Europe (Netherlands)
PCD

PCD Foundation

PCD

PCD Family Support Group

PCD

PCD Belangengroep

 
NTM Pulmonary Disease Patient Organizations
Idiopathic Bronchiectasis Patient Organizations
Heterotaxy
  • United States

Heterotaxy Connection

 
5p- Syndrome (Cat Cry/Cri du Chat Syndrome)
  • United States
5PMS

5 P Minus Society

Immunodeficiency Patient Organizations