How to participate
In order to participate in a study, you must personally contact the study coordinator of any of the participating institutions by phone or by e-mail. Please use the information below to inquire about participation.
United States
California
- Stanford University, Palo Alto
PI: John Day, MD, PhD
Contact: Carly E. Siskind, MS, CGC
Phone: 650-721-5588
E-mail: csiskind@stanfordmed.org
Connecticut
Florida
- Nemours Children's Clinic*, Orlando
PI: Richard Finkel, MD
Contact: Aixa Rodriguez
Phone: 407-567-6202
E-mail: aixa.rodriguez@nemours.org
*Note: This location is enrolling up to age 18 only
Iowa
- University of Iowa, Iowa City
PI: Michael Shy, MD
Contact: Shawna Feely, MS, CGC
Phone: 319-384-6362
E-mail: UICMTClinic@uiowa.edu
New York
Pennsylvania
- Children's Hospital of Philadelphia
PI: Sabrina Yum, MD
Office: 215-590-1719
E-mail: Yums@email.chop.edu
International
Australia
- The Children's Hospital at Westmead, Sydney, NSW
PI: Joshua Burns, PhD
Contact: Gabrielle Donlevy, Study Coordinator
Phone: +61 2 9845 1328
E-mail: gabrielle.donlevy@health.nsw.gov.au
Italy
- C. Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan
PI: Davide Pareyson
Co-PI: Isabella Moroni, MD
Sub-Investigator: Chiara Pisciotta, MD, PhD
Contact: Daniela Calabrese
Phone: (+39) 02-2394.3001
E-mail: Daniela.Calabrese@istituto-besta.it
United Kingdom
- National Hospital of Neurology and Neurosurgery, Queens Square
PI: Mary Reilly, MD
Contact: Mariola Skorupinska
Phone: 0044 203 108 7544
E-mail: Mariola.Skorupinska@uclh.nhs.uk