Principal Investigator: Richard Lewis, MD

Contact Information:

Tara Jones, MS, LCGC
Phone: 310-423-4268
E-mail: tara.jones@cshs.org

Principal Investigator: John Day, MD, PhD

Contact Information:

Carly E. Siskind, MS, CGC
Phone: 650-721-5588
E-mail: csiskind@stanfordmed.org

*Note: This location is enrolling up to age 18 only

Principal Investigator: Richard Finkel, MD

Contact Information: 

Aixa Rodriguez
407-650-6202
E-mail: aixa.rodriguez@nemours.org

Principal Investigator: Michael Shy, MD

Contact Information: 

Nicole Kressin, RN, MSN
Phone: 319-384-6362
E-mail: Nicole-Kressin@uiowa.edu

UICMTClinic@uiowa.edu

Principal Investigator: Thomas Lloyd MD, PhD
E-mail: tlloyd4@jhmi.edu

Contact Information: 

Simone Thomas
Research Program Assistant II 
Phone: 410-614-4188 
E-mail: sthom125@jhmi.edu

Principal Investigator: Dr. Reza Seyedsadjadi, MD

Contact Information: 

Natalie Grant
Phone: 617-726-0230
E-mail: nrgrant@mgh.harvard.edu

*This site is no longer recruiting participants for the Inherited Neuropathy Consortium.

Principal Investigator: David Walk, MD

Contact Information: 

Krista Mullen
Phone: 612-626-5153
E-mail: ness0153@umn.edu

Department of Neurology
601 Elmwood Avenue, Box 673
Rochester, NY 14627

Principal Investigator:  David Herrmann, MD
E-mail: david_herrmann@urmc.rochester.edu

Co-Principal Investigators:
Eric Logigian, M.D.
Michael Stanton, M.D.

Sub-Investigators
Katy Eichinger, PT, DPT, NCS.
Debra Guntrum, MS, FNP.
Cindy Gibson, MS, NP.

Contact Information: 

Janet Sowden 
Protocol Coordinator
janet_sowden@urmc.rochester.edu
Office: 585-275-1267 
Fax: 585-273-1255

University of Pennsylvania
450 Stemmler Hall
3450 Hamilton Walk
Philadelphia, PA  19104

Principal Investigator: Steven Scherer, MD, PhD
E-mail: sscherers@mail.med.upenn.edu

Contact Information: 

Diana Lee
Research Coordinator
Phone: 215-898-0180
E-mail: diana.lee@uphs.upenn.edu

Principal Investigator: Sabrina Yum, MD
Yums@email.chop.edu

Contact Information:

Sabrina Yum, MD
E-mail: yums@email.chop.edu