The patient advocacy group specializing in the porphyrias is here to help you. They are devoted to providing support, resources and services for patients and families. Join this group to help yourself, your family, and other patients. Membership is free.
The United Porphyrias Association (UPA) is proud to partner with the physicians of the Porphyrias Consortium and to support porphyria patients. UPA is committed to improving the quality of life of the porphyria patient community and is focused on advancing disease awareness, research and therapies. Please contact United Porphyrias for support! firstname.lastname@example.org or 800-868-1292.