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Primary Immune Deficiency Treatment Consortium:
Consists of 47 centers in North America whose shared goal is to improve the outcome of patients with rare, life threatening, inherited disorders of the immune system.

The PIDTC Can Help You:

 Learn more about inherited disorders of the immune system including newborn screening

 Quickly connect with experts in a PIDTC center in your area who diagnose and treat inherited immune disorders

 Learn about treatment options and new research studies for patients with these diseases

Answer questions your physician may have about immune disorders

 Connect with patient advocacy (support) groups

Announcement

The Fred Hutchinson Cancer Research Center (Fred Hutch), the University of Washington (UW), and Seattle Children’s Hospital (SCH) are jointly recruiting a full-time faculty member at the Assistant Professor or Associate Professor level.

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Funding Opportunities

 

IDF White Paper Challenge

The Immune Deficiency Foundation has issued a White Paper Challenge and invites submissions to address:

  • Innovative practices to expand awareness in communities of color 
  • Methods to increase equity in clinical trials 
  • Novel approaches to shortening the time between diagnosis and treatment 

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IDF Research Training Grant

The Immune Deficiency Foundation announces its 2022 Research Grant Application program, which encourages and supports patient-oriented research on primary immunodeficiency disease. The application deadline is February 28, 2022.

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SCID Angels 2021 Research Grant Application

SCID Angels for Life Foundation is proud to announce its first call for research proposals. SCID Angels will be awarding a one-time grant with a maximum of $25,000 for one proposal.

Learn more

Information for Patients & Families

Syndromes Defined:

 

Advocacy:

Find patient groups and national organizations
 

Newborn Screening:

 

Therapies:

Information for Professionals

Publications

Studies

Newsletters

Our Mission & Vision Statements

  • Mission Statement
  • Vision Statement
To foster collaborations across North America among researchers, physicians, allied health care workers, and patient advocacy groups with interest and expertise in primary immunodeficiency diseases. By working together, the PIDTC aims to promote research into basic, translational, and clinical science of blood and marrow transplantation, enzyme replacement, gene therapy and related treatments for primary immunodeficiency diseases.
Through collaborative research including multicenter prospective interventional trials, the PIDTC aims to enhance our understanding of primary immunodeficiency diseases and their therapies, with the goal of improving survival and quality of life for people living with these rare medical conditions.
Find A Participating Clinical Center Near You!
Thinking about participating in a clinical study? See if one of our many locations across the United States, Canada, Switzerland, and the United Kingdom is near you!

Find A Location