Contact Us

Contact Us

Contact the Porphyrias Consortium

Any administrative concerns can be addressed to:

  • Karli Hedstrom, MPH
    Project Manager
  • Porphyrias Consortium
    Comprehensive Porphyria Diagnostic & Treatment Center
    Icahn School of Medicine at Mount Sinai
  • Phone : (212) 241-7699
  • Email :


Looking for specific contact information for one of our participating centers? Please visit our Participating Clinical Centers page.

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Any questions or comments about this website may be addressed to:

Attention: The e-mail above cannot answer questions about your health, treatment, or any clinical issues.


Questions about your Health

To speak with someone that can address health or clinical concerns, please visit our list of Participating Clinical Centers.


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