Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.
Already Registered? Login
Learn more about porphyrias, find a participating clinical center near you, see frequently asked questions.
See opportunities to participate in research
Find information on the diagnosis and treatment of the porphyria
The Porphyria Consortium is providing a novel support mechanism for trainees, postdocs, and junior faculty who want to pursue new directions in porphyria. The PC leadership welcomes applicants from across the U.S. and will strive to provide a rapid review and constructive comments for applicants.
Find A Location
