Privacy Statement

Porphyrias Consortium is committed to protecting your privacy and developing technology that gives you the most powerful and safe online experience. This Statement of Privacy applies to the Porphyrias Consortium site and governs data collection and usage. By using the Porphyrias Consortium site, you consent to the data practices described in this statement.

Collection of your Personal Information

Porphyrias Consortium collects personally identifiable information, such as your email address, name, home or work address or telephone number. Porphyrias Consortium also collects anonymous demographic information, which is not unique to you, such as your ZIP code, age, gender, preferences, interests and favorites.

There is also information about your computer hardware and software that is automatically collected by Porphyrias Consortium. This information can include: your IP address, browser type, domain names, access times and referring website addresses. This information is used by Porphyrias Consortium for the operation of the service, to maintain quality of the service, and to provide general statistics regarding use of the Porphyrias Consortium site.

Please keep in mind that if you directly disclose personally identifiable information or personally sensitive data through Porphyrias Consortium public message boards, this information may be collected and used by others. Note: Porphyrias Consortium does not read any of your private online communications.

Porphyrias Consortium encourages you to review the privacy statements of Web sites you choose to link to from Porphyrias Consortium so that you can understand how those Web sites collect, use and share your information. Porphyrias Consortium is not responsible for the privacy statements or other content on Web sites outside of the Porphyrias Consortium and Porphyrias Consortium family of Web sites.

Use of your Personal Information

Porphyrias Consortium collects and uses your personal information to operate the Porphyrias Consortium Web site and deliver the services you have requested. Porphyrias Consortium also uses your personally identifiable information to inform you of other products or services available from Porphyrias Consortium and its affiliates. Porphyrias Consortium may also contact you via surveys to conduct research about your opinion of current services or of potential new services that may be offered.

Porphyrias Consortium does not sell, rent or lease its customer lists to third parties. Porphyrias Consortium may, from time to time, contact you on behalf of external business partners about a particular offering that may be of interest to you. In those cases, your unique personally identifiable information (e-mail, name, address, telephone number) is not transferred to the third party. In addition, Porphyrias Consortium may share data with trusted partners to help us perform statistical analysis, send you email or postal mail, provide customer support, or arrange for deliveries. All such third parties are prohibited from using your personal information except to provide these services to Porphyrias Consortium, and they are required to maintain the confidentiality of your information.

Porphyrias Consortium does not use or disclose sensitive personal information, such as race, religion, or political affiliations, without your explicit consent.

Porphyrias Consortium keeps track of the Web sites and pages our customers visit within Porphyrias Consortium, in order to determine what Porphyrias Consortium services are the most popular. This data is used to deliver customized content and advertising within Porphyrias Consortium to customers whose behavior indicates that they are interested in a particular subject area.

Porphyrias Consortium Web sites will disclose your personal information, without notice, only if required to do so by law or in the good faith belief that such action is necessary to: (a) conform to the edicts of the law or comply with legal process served on Porphyrias Consortium or the site; (b) protect and defend the rights or property of Porphyrias Consortium; and, (c) act under exigent circumstances to protect the personal safety of users of Porphyrias Consortium, or the public.

Use of Cookies

The Porphyrias Consortium Web site use "cookies" to help you personalize your online experience. A cookie is a text file that is placed on your hard disk by a Web page server. Cookies cannot be used to run programs or deliver viruses to your computer. Cookies are uniquely assigned to you, and can only be read by a web server in the domain that issued the cookie to you.

One of the primary purposes of cookies is to provide a convenience feature to save you time. The purpose of a cookie is to tell the Web server that you have returned to a specific page. For example, if you personalize Porphyrias Consortium pages, or register with Porphyrias Consortium site or services, a cookie helps Porphyrias Consortium to recall your specific information on subsequent visits. This simplifies the process of recording your personal information, such as billing addresses, shipping addresses, and so on. When you return to the same Porphyrias Consortium Web site, the information you previously provided can be retrieved, so you can easily use the Porphyrias Consortium features that you customized.

You have the ability to accept or decline cookies. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. If you choose to decline cookies, you may not be able to fully experience the interactive features of the Porphyrias Consortium services or Web sites you visit.

Security of your Personal Information

Porphyrias Consortium secures your personal information from unauthorized access, use or disclosure. Porphyrias Consortium secures the personally identifiable information you provide on computer servers in a controlled, secure environment, protected from unauthorized access, use or disclosure. When personal information (such as a credit card number) is transmitted to other Web sites, it is protected through the use of encryption, such as the Secure Socket Layer (SSL) protocol.

Changes to this Statement

Porphyrias Consortium will occasionally update this Statement of Privacy to reflect company and customer feedback. Porphyrias Consortium encourages you to periodically review this Statement to be informed of how Porphyrias Consortium is protecting your information.

Contact Information

Porphyrias Consortium welcomes your comments regarding this Statement of Privacy. If you believe that Porphyrias Consortium has not adhered to this Statement, please contact Porphyrias Consortium at We will use commercially reasonable efforts to promptly determine and remedy the problem.