The Lymphangioleiomyomatosis (LAM) Foundation
The Pulmonary Alveolar Proteinosis (PAP) Foundation
The Hermansky-Pudlak Syndrome (HPS) Network
Alpha-1 Foundation
Hystiocytosis Association
Sjogren’s Syndrome Foundation
Lymphangiomatosis and Gorham’s Disease Alliance
Children’s Interstitial and Diffuse Lung Disease (chILD) Foundation
NIH Genetics Home Reference