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Resources

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Resources

Links

The Lymphangioleiomyomatosis (LAM) Foundation
The Pulmonary Alveolar Proteinosis (PAP) Foundation
The Hermansky-Pudlak Syndrome (HPS) Network
Alpha-1 Foundation
Hystiocytosis Association
Sjogren’s Syndrome Foundation
Lymphangiomatosis and Gorham’s Disease Alliance
Children’s Interstitial and Diffuse Lung Disease (chILD) Foundation
NIH Genetics Home Reference

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The RLDC (U54HL127672) was a part of the Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research (ORDR), NCATS. This consortium was funded through a collaboration between the NCATS and the NHLBI.