Status: Recruiting
Summary
In the longitudinal studies, clinical and laboratory information will be collected on patients with vasculitis to study the disease over an extended period of time. The data from the longitudinal studies will be used by scientists to study the genetics and causes of vasculitis, find new ways to track disease and predict responses, to understand how to treat patients, and much more.
Target Enrollment
A total of 500 patients with EGPA will be enrolled.
Patients will have disease in various stages and of different duration. An adaptation of the American College of Rheumatology (ACR) criteria will be used for the diagnosis of EGPA. At the time of inclusion, patients must have documented evidence of small vessel vasculitis and 4 pre-defined criteria.
How to participate
In order to participate in a study, you must personally contact the study coordinator of any of the participating institutions by phone or by e-mail. Please use the information below to inquire about participation.
United States
Massachusetts
Minnesota
- Mayo Clinic College of Medicine, Rochester
Samantha Hughes
Study Coordinator
E-mail: hughes.samantha@mayo.edu
Phone: 507-266-1026
Ohio
- Cleveland Clinic Foundation, Cleveland
Minnie Singh
Study Coordinator
E-mail: singhn4@ccf.org
Phone: 216-445-2246
Pennsylvania
- University of Pennsylvania, Philadelphia
B. Minal Hatwar
Clinical Research Coordinator
E-mail: Bhagyavati.Hatwar@uphs.upenn.edu
Phone: 215-614-4406
- University of Pittsburgh, Pittsburgh
Laurie Hope, RN
Clinical Research Coordinator
E-mail: hopelk@upmc.edu
Phone: 412-648-4098
Utah
Canada
Ontario
- St. Joseph's Healthcare, Hamilton
Sandra Messier, RCT
Vascular Medicine Research Coordinator
E-mail: smessier@stjoes.ca
Phone: 905-522-1155 Ext. 33260
- University of Toronto Mount Sinai Hospital, Toronto
Judy Vendramini
Study Coordinator
E-mail: judy.vendramini@sinaihealthsystem.ca
Phone: 416-586-4800 Ext. 5511