5506: Longitudinal Protocol for Eosinophilic granulomatosis with polyangiitis (Churg-Strauss)

Status: Recruiting


In the longitudinal studies, clinical and laboratory information will be collected on patients with vasculitis to study the disease over an extended period of time. The data from the longitudinal studies will be used by scientists to study the genetics and causes of vasculitis, find new ways to track disease and predict responses, to understand how to treat patients, and much more.

Target Enrollment

A total of 500 patients with EGPA will be enrolled.

Patients will have disease in various stages and of different duration. An adaptation of the American College of Rheumatology (ACR) criteria will be used for the diagnosis of EGPA. At the time of inclusion, patients must have documented evidence of small vessel vasculitis and 4 pre-defined criteria.

How to participate

In order to participate in a study, you must personally contact the study coordinator of any of the participating institutions by phone or by e-mail. Please use the information below to inquire about participation.

United States



  • Mayo Clinic College of Medicine, Rochester
    Samantha Hughes
    Study Coordinator
    E-mail: hughes.samantha@mayo.edu
    Phone: 507-266-1026


  • Cleveland Clinic Foundation, Cleveland
    Minnie Singh
    Study Coordinator
    E-mail: singhn4@ccf.org
    Phone: 216-445-2246


  • University of Pennsylvania, Philadelphia
    B. Minal Hatwar
    Clinical Research Coordinator
    E-mail: Bhagyavati.Hatwar@uphs.upenn.edu
    Phone: 215-614-4406
  • University of Pittsburgh, Pittsburgh
    Laurie Hope, RN
    Clinical Research Coordinator
    E-mail: hopelk@upmc.edu
    Phone: 412-648-4098




  • St. Joseph's Healthcare, Hamilton
    Sandra Messier, RCT
    Vascular Medicine Research Coordinator
    E-mail: smessier@stjoes.ca
    Phone: 905-522-1155 Ext. 33260
  • University of Toronto Mount Sinai Hospital, Toronto
    Judy Vendramini
    Study Coordinator
    E-mail: judy.vendramini@sinaihealthsystem.ca
    Phone: 416-586-4800 Ext. 5511