What is the Vasculitis Patient-Powered Research Network (VPPRN)?

The Vasculitis Patient-Powered Research Network (VPPRN) is an extension of the VCRC Contact Registry. When you join the VPPRN you will automatically be enrolled in the VCRC Contact Registry. The VPPRN collects more in-depth information for vasculitis research on our secure patient portal.

 

The VPPRN seeks to conduct research in vasculitis in a new way by working directly with patients with vasculitis:

  • Patients will share their own clinical experiences and data
  • We will use the great potential research power of computerized health records
  • We will conduct research that matters to patients with vasculitis, including a range of studies from surveys to observational studies to clinical trials of new treatments.

The VCRC Contact Registry is the first step in becoming involved in vasculitis research. The V-PPRN is the next level of participation in vasculitis research.