Newsletter of the Rare Diseases Clinical Research Network

The staff of Spotlight are enthusiastic about the potential of our new publication to enhance communication among those interested in treatment and cure of rare diseases. We are very interested in your thoughts about how Spotlight can be improved. If you have suggestions for future issues, please let us hear from you. You can send your comments to


Mustafa Sahin, MD, PhD
Boston Children's Hospital

Assistant Editors

Dakota Campbell, Leighanne Toole, and Jill Schlabig Williams
Cincinnati Children's Hospital Medical Center

Editorial Board

Tiina Urv, PhD
Director, Extramural Research Program ORDR, NCATS, NIH

Hyder Jinnah, MD, PhD
Emory University

Joyce Kullman
Vasculitis Foundation; RDCRN Coalition of Patient Advocacy Groups

Italo Biaggioni, MD
Vanderbilt University

Marc E. Rothenberg, MD, PhD
Cincinnati Children's Hospital Medical Center

Chester B. Whitley, PhD, MD
University of Minnesota

Stephen Cederbaum, MD
University of California at Los Angeles

Nicholas Ah Mew, MD
Children's National Medical Center