Dr. Rothenberg received the Paul Ehrlich Lectureship Award Anonymous (not verified) Thu, 02/28/2019 - 09:33
Dr. Rothenberg

Dr. Rothenberg, the Principal Investigator for CEGIR, has been awarded the highest honor bestowed by the International Eosinophil Society for his major contributions to the advancement of our understanding of the eosinophil.

Precision Medicine approach to Nephrotic Syndrome Anonymous (not verified) Wed, 02/27/2019 - 15:05
NEPTUNE

NEPTUNE has embraced the concept of Precision Medicine proposed by the Institute of Medicine in 2011. The Precision Medicine strategy proposes the development of new disease definitions generated by a multilayered analysis of the disease course while patients receive their usual clinical care in observational studies.

Primary Immune Deficiency Treatment Consortium (PIDTC) Anonymous (not verified) Wed, 02/27/2019 - 14:46
PIDTC
The PIDTC conducts multi-center studies of primary immune deficiency (PID) diseases and aims to expand the understanding and improve treatments and outcomes for patients with rare PIDs.
CReATe Consortium initiates biomarker validation study in preparation for clinical trials Anonymous (not verified) Wed, 02/27/2019 - 14:34
CReATe

Through a recently awarded Clinical Trial Readiness grant from NINDS, CReATe investigators are now tapping into the invaluable resource that is the CReATe Biorepository in an effort to clinically validate leading biological fluid-based biomarker candidates to aid the design and implementation of future clinical trials.

Brittle Bone Disorders Consortium pioneers Osteogenesis Imperfecta research and treatment Anonymous (not verified) Wed, 02/27/2019 - 14:07
BBD

Through research, the BBDC is discovering new biomarkers of the disease that will lead to a deeper understanding of underlying pathophysiology of OI as well as assessing response to therapies

Spotlight on an RDCRN Consortium: The Porphyrias Consortium Anonymous (not verified) Mon, 06/06/2016 - 10:35

The Porphyrias Consortium (PC) seeks to continually improve the diagnosis and treatment of the eight major porphyrias.

Unique Path to FDA Approval Following an RDCRN Trial Anonymous (not verified) Sun, 06/05/2016 - 10:33

Investigators from the 'MILES' (Multicenter International LAM Efficacy of Sirolimus) trial recount the unique path it took seeking FDA review of their drug.

Working Together to Find Answers: An Example of Patient Advocacy Group Involvement Anonymous (not verified) Sat, 06/04/2016 - 10:27

The American Partnership for Eosinophilic Disorders (APFED) is one of several Patient Advocacy Groups collaborating with the Consortium of Eosinophilic Gastrointestinal Disease Researchers to conduct research. APFED provides support in many ways, such as engaging the patient community, participating in committee work, and even pledging supplement funding to support future research.