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MGNet

Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article
Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article
May 04, 2021

Challenges in conducting clinical research in the midst of the COVID-19 pandemic are spotlighted in an article from three consortia of the Rare Diseases Clinical Research Network (RDCRN). Their contribution was featured in the latest issue of Rare Neurological Diseases Special Report.

Frontiers in Congenital Disorders of Glycosylation Consortium
FCDGC
Myasthenia Gravis Rare Disease Network
MGNet
Global Leukodystrophy Initiative Clinical Trials Network
GLIA-CTN
Carolina Barnett-Tapia, MD, PhD
MGNet Announces 2020 Pilot Grant Award Recipient
July 08, 2020

The Myasthenia Gravis Rare Disease Network (MGNet) has awarded the 2020 MGNet Pilot Award to Carolina Barnett-Tapia, MD, PhD, Assistant Professor, Department of Medicine (Neurology) and Institute of Health Policy, Management and Evaluation, University of Toronto. Dr. Barnett-Tapia specializes in patient-centered outcomes in neuromuscular disorders, researching patients’ perspectives on their symptoms and treatments.

MGNet
myasthenia gravis
Amanda Guidon, MD
MGNet Announces 2020 Scholar Award Recipient
June 12, 2020

The Myasthenia Gravis Rare Disease Network (MGNet) has awarded the 2020 MGNet Scholar Award to Amanda Guidon, MD, a neuromuscular neurologist at the Massachusetts General Hospital and an Assistant Professor of Neurology at Harvard Medical School.

MGNet
myasthenia gravis
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The Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Office of Rare Diseases Research (ORDR). The RDCRN websites are hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke (NINDS) under grant number TR002818.